I'm going to try this really neat, new concept. It's called "living within my spoons
". I'm being a little bit glib because I've been given this advice ever since my diagnosis, almost seven years ago. I know it's the best possible way to get by with chronic illness, but I haven't had the luxury that I've got right now, which is that I've got no job, no classes, nothing to demand spoons when I haven't got them. This
post on Fighting Fatigue (a blog) talks about energy envelopes and while it doesn't explain enough to use the system it's talking about, I am going to work with the 0-100 scale at the bottom of the entry. My health has been bad and I've been fighting it - it can't hurt to try working with
I'm not sure how this is going to interact with my social life (and with LARP in particular), as the general goal is to work with the day's limits. I can usually tell in the morning what kind of shape I'm in and maybe I'll actually start doing what needs to be done in the afternoon hours, when I am at my peak, rather than doing more
in the afternoon, because I am at my peak. I really want to take advantage of this opportunity now that I realise I have it.
I have also started reading American Gods, which Gaiman has made available for free on the net for the next few weeks. Four chapters in and I am so, so hooked.